Friday, March 21, 2014

World Down Syndrome Day 2014!

There are so many different ways you can celebrate kiddos and adults like my Lilly today. Some of you will show your support with t-shirts, bracelets, blue and yellow ribbons, or crazy socks. Many of you will "like" and "share" pictures and videos that all of the different DS awareness pages are posting online. All I ask anyone to do today, is take a minute or two to really learn why Lillian isn't any different than you.
A big update on Lilly is that she has started walking. Out of the blue, just started taking steps to me and her dad. She is so proud of herself when she gets to where she's going! It makes us so proud.

When we showed her physical therapist what she could do, she was of course ecstatic, but she said something that was so awesome and true. She told me that her help didn't do anything for Lillian but show her how to do what she was already destined to do. Lillian was always going to stand, walk, and run. While we worked with her to find the best ways to do it, she achieved her goals on her own terms and in her own way. Just like she was always going to. In my own mind, I know that Lillian will do everything she wants to do. It's very refreshing to hear someone else put it in those words, though. It's also the simplest way to explain why Down Syndrome is nothing to be afraid of. While it may take Lillian and others with this diagnosis a little bit longer to complete their milestones, they WILL get there.

Lillian isn't happier than other babies because she has Down Syndrome. She isn't special because she has Down Syndrome. She also isn't stupid because she has Down Syndrome. Lillian is Lillian.

Lillian is silly, sassy, cuddly, and hilarious. Lilly is beautiful. She loves yogurt and fruit snacks. Lillian dances as soon as she hears music. Her favorite shows are SpongeBob, The Bubble Guppies, and WallyKazam. She demands attention because she looooves to be in the spotlight. Her puppy is her best buddy, she kisses him the same way he kisses her and gives him all of her socks and toys. Lilly hates when I do her hair, thank goodness the pebbles ponytail is adorable because that's the only thing she can't tear out. She loves bath time. Lillian knows when you're mad or upset, and she'll give you extra kisses to make you smile. Our Lillian is our world because she's our daughter and duh, you love your kids.
Oh, and Lillian happens to have Down Syndrome.

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